(This is a special entry for the blog today. Braden, age 10, is writing about Sean in honor of Take Your Child To Work Day)
I love my brother Sean. He is a brother that you can never replace, but sometimes we have our ups and down's.
I love living with Sean. He is a awesome brother. But sometimes we get into arguments, a lot of times about different things we don't agree on. Or if he wants me to do something when I'm busy or a lot of times, or it's the same way around when I want him to do something when he's busy.
A lot of times he is tired and cranky and he goes into a meltdown and then I have to go down to my grandma's room and sleep down there for the night. I hate seeing him like that, so sometimes when I get down there, I pray to God and say "God, please let Sean have not ADHD or Asperger's anymore!" I just hate seeing him like that.
When he gets Sophia it's mostly going to be Sean's dog, and Sean tells us he'll put the vest on her so we can't play with her. I keep telling him that she is a service dog when the vest is on, but when the vest is off it's the family dog.
The first time I saw Sophia I was like wow. she's beautiful! And when Sean went over to pet her, she was such a kisser she pushed Sean over and kissed him.
I really am looking forward for having Sophia as Sean's service dog. Once Sean and Sophia go into training then once they are done. She comes home there will be a big difference in this house hold.
Thanks for reading this and a big thank you to the people who donated money to The Sean & Sophia Foundation.
Sean's oldest brother,
Braden Forsyth.
Bringing Sean & Sophia Together
Thursday, April 28, 2011
Tuesday, April 26, 2011
Walking On Eggshells
Some events of the weekend really started making me think. I don't think I walk on eggshells so much when it comes to Sean himself. Not much scares you there when you've been through multiple hours-long meldowns, dealing with red tape, and the occasional impulsive activity like trying to ride a ceiling fan (and yes, the piece of the fan Sean broke off trying to do just that is currently sitting upstairs in my bedroom.)
I think it's more that I walk on eggshells of the autism in general. Going to church on Easter Sunday, we decided to attend a non-denominational service where the kids could go into other rooms for church. I was fine with that, until I realized all three kids were getting split up into separate rooms. I instinctively found myself clinging to Sean and saying to the person directing us into the room "Sean has Asperger's. Should I talk to the people watching him?" I found myself not wanting to leave him at all, and when the service was over, Sean was the first kid I picked up.
I also notice that I hover at soccer practice, art class, and a lot of other places I take Sean. I sign him up for all of this, thinking I'm letting him be a normal kid, but am I really letting him do that after all? I always make sure everyone in charge knows his condition and make them promise to call immediately if Sean gets upset. Is that really necessary all the time?
I guess the ultimate answer I came up with is yes and no. Sean has a legitimate disability and people who deal with him should be warned. Think back to his poor occupational therapist who got things thrown at her when Sean first started there! But then again, he's not going to do that in every single new situation I put him in, especially if it's something he has an interest in. So maybe it's a good idea to mention Sean has a condition, but step back and just let things happen as they do. I think it's something I have to learn quickly, because Sean himself is starting to say "Mom, you're embarrassing me!"
Like any other kid, the trick is figuring out when to let go.
I think it's more that I walk on eggshells of the autism in general. Going to church on Easter Sunday, we decided to attend a non-denominational service where the kids could go into other rooms for church. I was fine with that, until I realized all three kids were getting split up into separate rooms. I instinctively found myself clinging to Sean and saying to the person directing us into the room "Sean has Asperger's. Should I talk to the people watching him?" I found myself not wanting to leave him at all, and when the service was over, Sean was the first kid I picked up.
I also notice that I hover at soccer practice, art class, and a lot of other places I take Sean. I sign him up for all of this, thinking I'm letting him be a normal kid, but am I really letting him do that after all? I always make sure everyone in charge knows his condition and make them promise to call immediately if Sean gets upset. Is that really necessary all the time?
I guess the ultimate answer I came up with is yes and no. Sean has a legitimate disability and people who deal with him should be warned. Think back to his poor occupational therapist who got things thrown at her when Sean first started there! But then again, he's not going to do that in every single new situation I put him in, especially if it's something he has an interest in. So maybe it's a good idea to mention Sean has a condition, but step back and just let things happen as they do. I think it's something I have to learn quickly, because Sean himself is starting to say "Mom, you're embarrassing me!"
Like any other kid, the trick is figuring out when to let go.
Sunday, April 24, 2011
My Son, the Someday Savant.
So Easter Weekend has ended. I must admit this weekend had me nervous with the potential to be really hairy(rain and being stuck indoors), but all three kids gave each other enough space most of the time to keep all parties chill.
In my working with Sean, I’ve really revised my approach to how I talk to him. Before having kids, my impression of being a parent is to be the authoritative Dad first and best friend second. It works great for my oldest son, but I needed to change my tactics a little to be the best Dad to Sean. If I had to define it, my style with Sean is an assertive personal assistant. That means I try my best to keep him informed of impending changes or the next scheduled event throughout the day or night. It seems to work, as changes from set expectations he has, are the where the hairiest situations occur.
When I'm trying to be his friend, that hasn’t changed much between the two boys. I pal around, offer encouragement, crack jokes, and always let him know I’m there to answer questions. As his friend, he’s amazing, and I think the help he’s getting shows. His classmates all had very nice things to say last week, when I attended his Spring Play. He gets many invitations to birthday parties, which I almost want to scream with joy for each one he brings home. It’s another victory.
My background is in communication, so while in “friend mode” I spend much time trying to get the most out of our conversations. In learning about Aspergers, one of the positives of having the diagnosis is the savant characteristic. Our BSC has asked if he’s shown much towards any topic, which may become his subject. I’ve been passionate about quite a few things, and my greatest successes came from things I have the great interest in, so I understand this.
I’ve read articles and excerpts from books written by Malcolm Gladwell. He’s the author of the 10,000 hour rule, and if you practice or work on anything for 10,000 hours, you become an expert on that subject. I can’t fault Malcolm’s reasoning, as he cites examples of The Beatles and others like scholars and athletes that mastered their crafts.
The notion intrigues me...
Could Jen and I direct Sean into a craft or study, that could make him world famous?
Could we align him to something today that would last him a lifetime, and give him the things he’ll need to survive on his own?
I pick his brain in our talks all the time. The only real interest he has right now is in trains, and maybe something great will become of that. He's only seven, I'll let him be a kids first. Nevertheless, I am hopeful for the opportunity to hear him really expand upon a subject, and help him achieve his dreams.
I also have web pages bookmarked, to get him magazines if he decides to go into nuclear physics and become this era's Albert Einstein (another suspected person with Aspergers). Can't hurt to hope. I know he's going to do great things!
Have a Great Week!
-B.J.
In my working with Sean, I’ve really revised my approach to how I talk to him. Before having kids, my impression of being a parent is to be the authoritative Dad first and best friend second. It works great for my oldest son, but I needed to change my tactics a little to be the best Dad to Sean. If I had to define it, my style with Sean is an assertive personal assistant. That means I try my best to keep him informed of impending changes or the next scheduled event throughout the day or night. It seems to work, as changes from set expectations he has, are the where the hairiest situations occur.
When I'm trying to be his friend, that hasn’t changed much between the two boys. I pal around, offer encouragement, crack jokes, and always let him know I’m there to answer questions. As his friend, he’s amazing, and I think the help he’s getting shows. His classmates all had very nice things to say last week, when I attended his Spring Play. He gets many invitations to birthday parties, which I almost want to scream with joy for each one he brings home. It’s another victory.
My background is in communication, so while in “friend mode” I spend much time trying to get the most out of our conversations. In learning about Aspergers, one of the positives of having the diagnosis is the savant characteristic. Our BSC has asked if he’s shown much towards any topic, which may become his subject. I’ve been passionate about quite a few things, and my greatest successes came from things I have the great interest in, so I understand this.
I’ve read articles and excerpts from books written by Malcolm Gladwell. He’s the author of the 10,000 hour rule, and if you practice or work on anything for 10,000 hours, you become an expert on that subject. I can’t fault Malcolm’s reasoning, as he cites examples of The Beatles and others like scholars and athletes that mastered their crafts.
The notion intrigues me...
Could Jen and I direct Sean into a craft or study, that could make him world famous?
Could we align him to something today that would last him a lifetime, and give him the things he’ll need to survive on his own?
I pick his brain in our talks all the time. The only real interest he has right now is in trains, and maybe something great will become of that. He's only seven, I'll let him be a kids first. Nevertheless, I am hopeful for the opportunity to hear him really expand upon a subject, and help him achieve his dreams.
I also have web pages bookmarked, to get him magazines if he decides to go into nuclear physics and become this era's Albert Einstein (another suspected person with Aspergers). Can't hurt to hope. I know he's going to do great things!
Have a Great Week!
-B.J.
Sunday, April 17, 2011
Home Evaluations Complete...Thank Goodness!
Sunday was our second and final home evaluation with Perfect Fit Canines. Again, we were asked to not give Sean his medicine until Jim and Susan were able to complete the evaluation. Sean was having a really good morning, so it actually wasn't that hard of a request to follow this day.
It was one of those great mornings you would just like to bottle as a parent. Emma slept over at my aunt's house the night before, so she wasn't here to wake everyone up at the crack of dawn. Braden was feeling horribly guilty for an incident the night before in which a book he threw met Sean's face (Sean has a lovely cut and black eye as a souvenir)so he woke up first, waited for Sean to wake up, took him downstairs, and got him breakfast. BJ and I got to sleep until 10am. Whoo hoo! I came downstairs and it was awesomely quiet, with Braden playing Angry Birds on his IPod and Sean playing Just Dance on the Wii. With a morning like that, anything seems possible.
So by the time Jim and Susan arrived, Emma was back and everyone was awake and happy. It actually got to the point where we had to think of things to provoke Sean so they could get the reactions recorded to show Sophia's trainer what to work on. I felt horribly guilty doing this. Who wants to purposely make their child upset? Especially a kid who, when he gets upset, is prone to massive fits and meltdowns. But we were somehow able to start a couple arguments with Sean, get a few desired reactions, and quickly calm him down. Thankfully all Jim and Susan needed was a little over an hour, and we were able to give Sean his meds and everything went back to normal.
So this is where we stand. The video of Sean goes back to Perfect Fit Canines and their trainer Jeff. He looks at the video as well as the other information Jim and Susan have collected from us and from evaluating Sean, and then he begins forming a plan on how to train Sophia, and from there, Sean and Sophia together. Susan will outline a plan with one or two things for Sean and Sophia to work on at a time, we pay a little bit of money towards Sophia at that point (that also covers the cost of the time and whatever else they need to train her for those particular tasks)sign off on everything, and then we begin. So hopefully we will be hearing from Jim, Susan, and Jeff as well soon, and training can officially begin!
It was one of those great mornings you would just like to bottle as a parent. Emma slept over at my aunt's house the night before, so she wasn't here to wake everyone up at the crack of dawn. Braden was feeling horribly guilty for an incident the night before in which a book he threw met Sean's face (Sean has a lovely cut and black eye as a souvenir)so he woke up first, waited for Sean to wake up, took him downstairs, and got him breakfast. BJ and I got to sleep until 10am. Whoo hoo! I came downstairs and it was awesomely quiet, with Braden playing Angry Birds on his IPod and Sean playing Just Dance on the Wii. With a morning like that, anything seems possible.
So by the time Jim and Susan arrived, Emma was back and everyone was awake and happy. It actually got to the point where we had to think of things to provoke Sean so they could get the reactions recorded to show Sophia's trainer what to work on. I felt horribly guilty doing this. Who wants to purposely make their child upset? Especially a kid who, when he gets upset, is prone to massive fits and meltdowns. But we were somehow able to start a couple arguments with Sean, get a few desired reactions, and quickly calm him down. Thankfully all Jim and Susan needed was a little over an hour, and we were able to give Sean his meds and everything went back to normal.
So this is where we stand. The video of Sean goes back to Perfect Fit Canines and their trainer Jeff. He looks at the video as well as the other information Jim and Susan have collected from us and from evaluating Sean, and then he begins forming a plan on how to train Sophia, and from there, Sean and Sophia together. Susan will outline a plan with one or two things for Sean and Sophia to work on at a time, we pay a little bit of money towards Sophia at that point (that also covers the cost of the time and whatever else they need to train her for those particular tasks)sign off on everything, and then we begin. So hopefully we will be hearing from Jim, Susan, and Jeff as well soon, and training can officially begin!
Wednesday, April 13, 2011
How Do You Silence The Critics?
The title of this blog is a question I have been trying to answer since Sunday, when a conversation over a couch turned very ugly.
My mother was on the phone with my uncle. She was asking him to take a couch that is currently being stored in our garage and move it to his house, where he has quite a bit more storage room. Our goal is to try and get the garage cleaned out and set up with toys for all three kids for the summer months. Somehow in the midst of my uncle agreeing to take the couch, the conversation turned to Sean.
My mom was telling my uncle about Sean's progress and therapy and we have been doing to raise funds for him and Sophia. Apparently my uncle wasn't too impressed.
He then got off on a rant and told my mother that there was nothing wrong with Sean. He doesn't have Asperger's or any other disability. He's fine, he just behaves badly and we don't control him. As far as the fundraising goes, apparently he thinks it's a scam, I'm just taking people's money, and nothing is going to come out of it.
I don't know which part of what he said upset me more...that nothing is wrong with Sean, or that he in essence called me a thief and a scam artist.
I wish I could say there was nothing wrong with Sean. I wish I could say he didn't have Asperger's. I wish Sean was a completely normal kid. Sean himself wishes all of that as well. We're not going around saying he has Asperger's because it's a cool thing to do or we want attention. We say it because he does in fact have it. The diagnosis has been confirmed by two psychologists and and endless amount of counselors and therapists who have worked directly with Sean. My uncle spends a few minutes around Sean a handful of times a year, and that's enough evidence in his mind to conclude all of us are wrong.
I want to make something clear to everyone: We choose to make Sean's story public not because we want attention for ourselves, sympathy, money, or anything else. We choose to make his story public to bring attention to the condition of Asperger's Syndrome. My uncle is living proof that this disorder is still very misunderstood, our old school district is proof that there is still not enough being done to help children with this disorder, and Sophia is hope that there are wonderful avenues of therapies out there that could help my little boy improve and lead as normal of a life as possible. This is why we go public with our journey, both our struggles and our triumphs. There isn't any huge reward in it for us. I don't plan on going Hollywood here. I just want the opportunity to help my own child, and others who need it as well.
It hurts when your own family doubts you and your efforts. How can someone related to you think such awful things? If I want to help Sean though I can't dwell on it. I take comfort in the fact that most of my family has been extremely supportive, and we have a legion of friends and even strangers that support us as well. That love definitely trumps the hate, and we will accomplish what we need to for Sean, no matter what anyone else thinks otherwise.
My mother was on the phone with my uncle. She was asking him to take a couch that is currently being stored in our garage and move it to his house, where he has quite a bit more storage room. Our goal is to try and get the garage cleaned out and set up with toys for all three kids for the summer months. Somehow in the midst of my uncle agreeing to take the couch, the conversation turned to Sean.
My mom was telling my uncle about Sean's progress and therapy and we have been doing to raise funds for him and Sophia. Apparently my uncle wasn't too impressed.
He then got off on a rant and told my mother that there was nothing wrong with Sean. He doesn't have Asperger's or any other disability. He's fine, he just behaves badly and we don't control him. As far as the fundraising goes, apparently he thinks it's a scam, I'm just taking people's money, and nothing is going to come out of it.
I don't know which part of what he said upset me more...that nothing is wrong with Sean, or that he in essence called me a thief and a scam artist.
I wish I could say there was nothing wrong with Sean. I wish I could say he didn't have Asperger's. I wish Sean was a completely normal kid. Sean himself wishes all of that as well. We're not going around saying he has Asperger's because it's a cool thing to do or we want attention. We say it because he does in fact have it. The diagnosis has been confirmed by two psychologists and and endless amount of counselors and therapists who have worked directly with Sean. My uncle spends a few minutes around Sean a handful of times a year, and that's enough evidence in his mind to conclude all of us are wrong.
I want to make something clear to everyone: We choose to make Sean's story public not because we want attention for ourselves, sympathy, money, or anything else. We choose to make his story public to bring attention to the condition of Asperger's Syndrome. My uncle is living proof that this disorder is still very misunderstood, our old school district is proof that there is still not enough being done to help children with this disorder, and Sophia is hope that there are wonderful avenues of therapies out there that could help my little boy improve and lead as normal of a life as possible. This is why we go public with our journey, both our struggles and our triumphs. There isn't any huge reward in it for us. I don't plan on going Hollywood here. I just want the opportunity to help my own child, and others who need it as well.
It hurts when your own family doubts you and your efforts. How can someone related to you think such awful things? If I want to help Sean though I can't dwell on it. I take comfort in the fact that most of my family has been extremely supportive, and we have a legion of friends and even strangers that support us as well. That love definitely trumps the hate, and we will accomplish what we need to for Sean, no matter what anyone else thinks otherwise.
Friday, April 8, 2011
New Can Be Scary...and Really Difficult!
It is has been a few days since the last blog, and I'm happy to say that's because we've been either busy or outside. Spring FINALLY seems to be breaking through here and there in Pittsburgh, and I cannot wait for the day it gets nice and stays that way for a few months!
One of the busy things I have been working on is an application for summer camp for Sean. His wonderful case manager Lisa has gotten him into a great camp for most of June and July that we think will really help him with his sensory and socialization skills. Plus he will be surrounded by kids that are just like him, so he will discover he's not alone in dealing with Asperger's.
This week Sean has also started heavily into occupational therapy, as well as a six-week art program at school. Soccer also starts next week as well. While all of this may sound fun and exciting to you or me, it has been anything but for Sean.
It's important to get Sean out and about and socialized, and into things that can either help him or that he can have fun with. But when you have a child with Asperger's, even if you know he will like the activity in the end, you have to be prepared for one heck of a fight until he gets used to it.
So far this week Sean has HATED occupational therapy and art class. While I was pretty impressed that the OT really set this up to be fun for Sean, and played to his likes of puzzles and arts in combination with the physical things he's not so good at, this is the response he gave us...
Not pretty, huh?
I don't expect the same reaction to soccer next week, but I am totally prepared for it.
It's funny, but as I was filling out the forms for summer camp, some of the questions asked what can be expected of Sean's behavior, and if they should anticipate any problems. How do I even begin to truthfully answer that without scaring the heck out of the counselors? Then again, in this line of work, maybe they are already expecting it, and they may deal with it a heck of a lot better than I do!
One of the busy things I have been working on is an application for summer camp for Sean. His wonderful case manager Lisa has gotten him into a great camp for most of June and July that we think will really help him with his sensory and socialization skills. Plus he will be surrounded by kids that are just like him, so he will discover he's not alone in dealing with Asperger's.
This week Sean has also started heavily into occupational therapy, as well as a six-week art program at school. Soccer also starts next week as well. While all of this may sound fun and exciting to you or me, it has been anything but for Sean.
It's important to get Sean out and about and socialized, and into things that can either help him or that he can have fun with. But when you have a child with Asperger's, even if you know he will like the activity in the end, you have to be prepared for one heck of a fight until he gets used to it.
So far this week Sean has HATED occupational therapy and art class. While I was pretty impressed that the OT really set this up to be fun for Sean, and played to his likes of puzzles and arts in combination with the physical things he's not so good at, this is the response he gave us...
Not pretty, huh?
I don't expect the same reaction to soccer next week, but I am totally prepared for it.
It's funny, but as I was filling out the forms for summer camp, some of the questions asked what can be expected of Sean's behavior, and if they should anticipate any problems. How do I even begin to truthfully answer that without scaring the heck out of the counselors? Then again, in this line of work, maybe they are already expecting it, and they may deal with it a heck of a lot better than I do!
Monday, April 4, 2011
One Step Closer!
So Sean's evaluation for Perfect Fit Canines was yesterday. It was a rough start, but the day ended fantastic.
In order to get an idea of how severe Sean's autism is and his level of agitation, Sean had to go half of the day without his medicines. Not sure who that was rougher on, Sean or the rest of us! At around 1pm Jim stopped over and got to see Sean in action up close and personal. Sean was extremely hyper, but manageable. Trust me, I've seen him a lot worse. He did give Jim enough material though, and with BJ, my mom, and I filling in the rest of the blanks, gave him a good idea of what he was dealing with and what behaviors Sophia would need to be trained to help with. This is the one thing I truly love about Perfect Fit Canines. I know Jim, Susan, and Jeff are going to make sure both Sophia and Sean are trained and ready before she comes to us. I am an admitted cat person, and have almost no experience training dogs, so that's a huge relief to me that Sophia will come to us with all of the basics learned.
After Sean had a semi-meltdown when Jim asked him to clean up his trains, he was finally allowed his Adderall...and a visit to Misty Pines Dog Park to visit Sophia! The whole family (minus Emma, who was with my aunt for the afternoon) plus our current dog of the house Odie, all packed in the car and headed over.
BJ and my mom had not met Sophia until yesterday, and I think one look at her and they were both in love. She is simply just a sweet dog. She's a kisser. Every time she greets someone she licks the daylights out of their hands. And she just ran from person to person saying hello...before running back and taking her place at Sean's side.
That was the amazing thing as we took Sophia down to one of the agility areas and played with her. No matter where she ran, within a minute or two she ran back to Sean. They've only been together about three times, and it's like she already knows she is going to be taking care of him. I was astounded. It was a great end to the afternoon. The whole family got to hang out with Sophia, Odie was introduced to her and that went well, and to watch Sean play with her was so cool. They are going to be really great together!
We also handed Perfect Fit Canines and $1800 check for the down payment on Sophia, so she is officially reserved for Sean now! None of that would be possible without all of the help and support we have received from all of you. Our family has been extremely blessed to have such supportive family and friends.
Our journey now moves to the next phase. Jim will soon be sending us a schedule, and the fun visits with Sophia are now over. Now whenever Sean sees her, it's for work. Both will soon begin an intensive training program so they learn how to work together. The process is expected to take at least ten months. We also found out Sean won't be able to bring Sophia home, even after training is complete, until she is paid for in full. Jim told us the costs could end up being around $15,000.
With that in mind, and the fact that I was informed today that I did not get the job I was applying for with the Pittsburgh Public Schools, this has officially become my new career. The Sean & Sophia Foundation will be raising funds for Sean and Sophia, but will soon be turning into a nonprofit as well. We feel since everyone has been so supportive in helping Sean that we are obligated to pay that love forward, and our mission will be to help provide funding to obtain service dogs or any other equipment for those with special needs that may otherwise be financially out of reach. So I guess I got a new job today after all!
In order to get an idea of how severe Sean's autism is and his level of agitation, Sean had to go half of the day without his medicines. Not sure who that was rougher on, Sean or the rest of us! At around 1pm Jim stopped over and got to see Sean in action up close and personal. Sean was extremely hyper, but manageable. Trust me, I've seen him a lot worse. He did give Jim enough material though, and with BJ, my mom, and I filling in the rest of the blanks, gave him a good idea of what he was dealing with and what behaviors Sophia would need to be trained to help with. This is the one thing I truly love about Perfect Fit Canines. I know Jim, Susan, and Jeff are going to make sure both Sophia and Sean are trained and ready before she comes to us. I am an admitted cat person, and have almost no experience training dogs, so that's a huge relief to me that Sophia will come to us with all of the basics learned.
After Sean had a semi-meltdown when Jim asked him to clean up his trains, he was finally allowed his Adderall...and a visit to Misty Pines Dog Park to visit Sophia! The whole family (minus Emma, who was with my aunt for the afternoon) plus our current dog of the house Odie, all packed in the car and headed over.
BJ and my mom had not met Sophia until yesterday, and I think one look at her and they were both in love. She is simply just a sweet dog. She's a kisser. Every time she greets someone she licks the daylights out of their hands. And she just ran from person to person saying hello...before running back and taking her place at Sean's side.
That was the amazing thing as we took Sophia down to one of the agility areas and played with her. No matter where she ran, within a minute or two she ran back to Sean. They've only been together about three times, and it's like she already knows she is going to be taking care of him. I was astounded. It was a great end to the afternoon. The whole family got to hang out with Sophia, Odie was introduced to her and that went well, and to watch Sean play with her was so cool. They are going to be really great together!
We also handed Perfect Fit Canines and $1800 check for the down payment on Sophia, so she is officially reserved for Sean now! None of that would be possible without all of the help and support we have received from all of you. Our family has been extremely blessed to have such supportive family and friends.
Our journey now moves to the next phase. Jim will soon be sending us a schedule, and the fun visits with Sophia are now over. Now whenever Sean sees her, it's for work. Both will soon begin an intensive training program so they learn how to work together. The process is expected to take at least ten months. We also found out Sean won't be able to bring Sophia home, even after training is complete, until she is paid for in full. Jim told us the costs could end up being around $15,000.
With that in mind, and the fact that I was informed today that I did not get the job I was applying for with the Pittsburgh Public Schools, this has officially become my new career. The Sean & Sophia Foundation will be raising funds for Sean and Sophia, but will soon be turning into a nonprofit as well. We feel since everyone has been so supportive in helping Sean that we are obligated to pay that love forward, and our mission will be to help provide funding to obtain service dogs or any other equipment for those with special needs that may otherwise be financially out of reach. So I guess I got a new job today after all!
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